Ask me stuff about disability, symptoms, etc, whatever you like. No holds barred. Can’t guarantee I’ll be able to answer everything but I have nothing but time on my hands.
Ask me stuff about disability, symptoms, etc, whatever you like. No holds barred. Can’t guarantee I’ll be able to answer everything but I have nothing but time on my hands.
I know that for many disabled people, there are good days and bad days (where things feel either better or worse than usual).
Is it like that for you too? If so, is there anything in particular that makes a “good day” good?
Absolutely, thank you for asking. Even one year in I’m still figuring out my good days from bad days and I often tell people who see my symptoms that I’m discovering them (the symptoms) the same time they (the people) are. It doesn’t come with an instructions manual lol.
Sometimes I might be able to go out and run my errands without too many problems, and sometimes I won’t be able to. But I won’t know before I actually do it, so most of the time I try to avoid any known triggers and stay sedentary.
A good day is when I don’t get too much nausea and especially not the “99%” nausea, the moment where basically any sensation whatsoever can cause me to throw up. These usually last several minutes and I have to stay perfectly still, not thinking, not moving, not talking, only being able to wait until it goes away.