鐵鉢の中へも霰
teppachi no naka e mo arare

into my
iron begging bowl, too
hailstones

—Santōka Taneda

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Joined 1 year ago
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Cake day: June 13th, 2023

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  • That sucks in terms of proving disability in your country (you would be eligible already in mine but since disability here is only half of minimum wage it’s not really the solution like it is where you are).

    But it’s really fantastic that you are able to do so much!! That’s way better. You’re going to be able to work from home lying down. Lots of cool ideas in here.

    I think you should still apply for disability every year. Maybe find a support group or organisation for people with broken necks/spinal injuries, they might know some aspects of the process.

    Good luck to you. I know what it’s like to lose everything, and I really hope you are able to rebuild some kind of life for yourself.










  • For example, myalgic encephalomyelitis (sometimes referred to as chronic fatigue syndrome) has been dismissed and under-researched for decades. The lack of research has perpetuated a limited understanding of the underlying biology, a lack of diagnostic testing, a lack of respect for patient experiences and an embarrassing lack of action. Research funding is extremely low relative to the burden of the disease and its prevalence.

    About half of long COVID patients also meet the diagnostic criteria for myalgic encephalomyelitis. By our sheer number, our advocacy for more research and clinical trials should be harder to dismiss.

    This is dismissed and underfunded world-wide.

    The status quo - pretending it’s all in your head - is in the interests of insurance companies (and governments with disability welfare systems).